Becoming Visible: My Life with ‘Invisible Illness’

I am a face of “Invisible Illness”. I want to show you what one symptom of living with an “invisible” me is like, in hopes others struggling with illness, disease & the purgatory of Undiagnosis know “I see you” to give others insight what my invisible illness looks like. So let me take off my mask..

ER5-18-14

I live with multiple Autoimmune diseases; often referred to “Invisible Illnesses” because these diseases cannot be seen to the naked eye. Because of this, many who are diagnosed with Autoimmune diseases, like Crohn’s Disease or ulcerative colitis, are not taken seriously because physically looking at me, you cannot see the physical toll the internal destruction and irreversible damage.
My invisible illness means taking upwards of 20 pills a day.

20140213-191351.jpgIt doesn’t show the friendships I’ve lost because I’ve had to back out of plans, fun events and celebrations. It doesn’t show how hard it is to maintain a relationship with someone; the fatigue, the guilt of not feeling well enough to care for myself and the guilt knowing they may have to care for me,. Caregiver/Family tip: They may not always know what to say or how to offer help, but even offering to come over, sit with they & just stay awhile speaks volumes. A little help gives a lot of hope. Pain is incredibly lonely.

to read the whole article, please visit inflammatoryboweldisease.net

 

3 thoughts on “Becoming Visible: My Life with ‘Invisible Illness’

  1. Pingback: On My Feet

  2. Pingback: perception & icebergs. | #purpleproject

  3. So powerful and written with such raw emotion and truth To those you touch and reach you are never invisible You are a pillar of strength and inspiration. Thanks for sharing and opening that fragile window so others can walk thier path with a little more confidence.
    Blessings my friend.
    You are never alone when you let your mind drift to the many friends that truely see you for the beautiful person you are.
    Stay strong …. stay on the path.

    Like

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