perception & icebergs.

(for a better reading experience, pop this blog up on your desk/laptop & grab a snack & come on back.. cause i’m bout to spit some truth.)

in my next 13 years, i hope that the man i will someday choose to love will see and accept me not for my curse, but as a blessing. i don’t want to be seen as my illness & i’ve also learned that i do not need verbal validation how sick i am or have been, yet pretend to be a normal functioning human all at the same time. i want to be seen as a wife, with a compassion for serving others, with kids at my dinner table, in a house that i own, with a dog sitting next to my front porch swing. i want to cross a thousand finish lines without raising money to find a cure for a disease that will be in full Remission, with hopes of being so much closer to a better quality of life with this illness. my hope is that in my lifetime, i will see better therapies, better care & more compassion to those living with illness – both visible and not so visible. i want to be healthy enough to take care of my family, be able to conceive children if God has this in His plan for me and i want my life to be more meaningful, grateful and full of.. well, life.

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something very beautiful happens to people when their world has fallen apart: a humility, a nobility, a higher intelligence emerges at just the point when our knees hit the floor. – marianne williamson

for information regarding extraintestinal manifestions, visit:
Very Well -What Are the Extra-Intestinal Complications of Crohn’s Disease?

http://online.ccfa.org/site/DocServer/Kim.pdf?docID=25687 

before i got sick

the following is a collaborative piece that would simply not exist without the knowledge you have all given to me. i dedicate these words to all of the generous souls who have let me inside of their personal worlds. on the good days.. and on the worst days of their lives. this is my love letter to all of the people who have made an impact on my personal journey.

dont let my positivity fool you. i have had hardships and struggles in my life with disease. i will not lie; there are days i quit, knowing i can start over fresh the next day. but the things that have been taken away from me due to my disease, have in turn provided me in opportunity; ten fold. friends, networks of support, communities filled with IBD & autoimmune patients just. like. me. who knew?

WEGO Health Activist Awards

20131217-192815.jpgWEGO Health Activist Awards

im a firm believer in…. standing up for what you believe in! behind every choice in your life should stand someone who has good moral, best interest for all parties involved & the ability to help support others by supporting the small goals towards one common goal. thats teamwork, right?

my support team doesnt just involve friends and family. my support group lives 25,000 miles away. my support group lives online through social media, through magazines we produce, through professional communities and national non-profits. many people make up my support team of IBD specialists – i say specialists in a unique way. we may not all be doctors, but we have something better than doctors will ever be able to tell us; personal experience. we have been operated on, tested on, criticized for not looking sick enough & criticized for the way we look when we are sick. something else doctors will never be able to tell us is how to deal with these things when they happen to us.

there are many people that have helped me on me journey to become who i am today. i am eternally grateful for the wisdom and advice they have given me throughout the years. it hasnt always been easy to hear, read and experience, but it has helped me cope. it has helped me come to terms with my diagnosis and live a better quality of life. most importantly, it has taught me to fight.. for myself, for others and for awareness.  many people look at social media like it is a negative thing, but i have had such an amazing experience connecting with others like myself, that i couldnt imagine a life without it. communicating with others who live with IBD and chronic disease, raising awareness to diseases like ours, finding funds to study and research towards a cure and… drumroll… advocate for others!!

im proud of who i have grown to be and that speaks volumes. ive fought like hell to be where i am today and have many people to thank for that.

i ask that you nominate your health activist heroes & the people who have helped mold you into a better person, advocate & patient. maybe you dont have a disease but you follow someone elses journey or blog through social media (instagram, twitter, facebook, website/blog)… i ask that you dig deep in your heart and thank them with a nomination like i have. take the time to browse around some of the blogs that may be related to mine & you will find some amazing, courageous and crazy, fun people who find ways to fight for others by providing them support and relief that things will be ok.

awards.wegohealth.com/   – nominate your favorite activist here!

http://instagram.com/jojocrabb https://www.facebook.com/jojocrabb  https://twitter.com/kjocrabb http://www.linkedin.com/pub/kelly-crabb/71/bb2/a44/